Promises Aren't Policies, Policies Aren't Promises
Cutting through bureaucratic red tape barriers to healthcare can't just be symbolic.
Hey there! So glad you found your way here. Words I Wheel By is my little space to try to add some nuance to disability discussions and make the disability experience more accessible. If that resonates, I hope you’ll join the conversation and subscribe to get future posts rolling straight to your inbox.
“RFK Jr. and Dr. Oz say health insurers will cut red tape on ‘prior authorizations.’”
I admit this headline stopped me in my tracks for a moment. Could it be possible that I agree with something Dr. Oz and RFK Jr. are doing?
Not really.
This big development in the supposed cutting of red tape is just “a coalition of private health insurance companies [that] voluntarily pledged to standardize and reform” the prior authorization process by the end of this year.
So we’re meant to believe that in half a year, one of the most harmful aspects of the health insurance industry, which has been in practice since the 1960s, will finally be eased?
I’ll believe it when it happens. I’m quite confident it won’t, though, because promises aren’t policies. For that matter, policies aren’t even actual legal protections anymore, it seems. And to be honest, the reality is that long before this administration began, policies weren’t promises anyway.
The Americans with Disabilities Act (ADA) is a prime example of this. Next month, the ADA will be 35 years old. I’ve never known life without the ADA, and as a disabled person, the law’s existence is something I definitely don’t take for granted. I know for certain my life is better because of it. But I often say that while you can create a policy, you can’t legislate an attitude. Stigma against disabled people remains pervasive, and so too does a lack of understanding about why it’s so vital to adhere to the ADA.
Beyond that, the ADA doesn’t have strong enough enforcement mechanisms in place, so plenty of people take it as a suggestion rather than a law. It’s largely reliant on the promise that a person’s understanding will be stronger than their biases, and they’ll willingly follow legal guidelines.
There’s also a financial angle to the comparison between upholding the ADA and the prior authorization reform pledge. Unfortunately, many hold the (primarily false) assumption that adhering to the ADA is a financial burden. Similarly, I imagine insurance companies, which deem prior authorization to be a matter of cost savings, will ultimately see reforms as a financial burden (also primarily false).

Anyway…considering the government doesn’t enforce or uphold actual laws, I can’t say I’m jumping for joy over a non-binding pledge. As this administration is trying to slash access to healthcare and add administrative burdens like Medicaid work requirements, announcing what amounts to a group hangout to discuss reforming prior authorization is like putting lipstick on a pig. (Side note: what a ridiculous saying that's quite frankly rude to pigs. A pig wearing lipstick would be utterly adorable.)
Clearly, this administration’s refrain of eliminating “waste, fraud, and abuse” continues to ring hollow here. Prior authorization is 100% a waste of time and resources, and it’s most definitely an abusive practice. Were you at my doctor appointments, insurance employee? (Or should I say AI-powered agent?) Do you know what it’s like to be inside my body? Are you a medical expert? No, no, and no.
As a person who uses multiple kinds of durable medical equipment (like, for example, wheelchairs), I’ve long known the reality of insurance denials and appeals (though my mom, who is incredibly skilled at dealing with such trouble, has been the one to help me through). More recently, as I’ve been navigating some chronic health conditions while paying through the roof just to stay insured, the prior authorization process keeps an inextinguishable fire of frustration burning in me.
Obviously, I’d like to be wrong about this pledge. I’d like to see it lead to meaningful change. And according to the press release about the pledge, the Centers for Medicare & Medicaid Services “encourage continued innovation and collaboration but reserves the right to pursue additional regulatory actions if necessary.”
So, I’d like to have a glimmer of hope that as this administration wields their power like an axe, they’ll actually use it to do something—anything—good. Even so, the healthcare system isn’t in need of bandage solutions like pledges. It’s in need of a massive overhaul. Unfortunately, this administration thinks so, too, except their vision is destructive rather than reparative.
There’s still time to hold on to hope, I think. Maybe. You can call or email your representatives and demand no cuts to Medicaid.
It shouldn’t be a bold statement to say that access to healthcare and making decisions about your own body are human rights.
I know that resources are scarce right now, but if you feel you’ve learned from my work and have the capacity to support, please consider a paid subscription. With a subscription, you can unlock access to my list of what I recommend watching for authentic disability representation, which I’m committed to keeping updated.
Or, here’s a link for one-time support, which is also greatly appreciated.
And if neither of these are viable for you, not to worry. Either way, I’m truly so glad you’re here. Thank you!
The health insurers decided to preemptively do this very small thing with no regulatory actions so Congress wouldn’t do something stronger or with teeth.
I have little hope. For over a decade one of my meds needed yearly PA. Since late 2024, my doctor has to send in a PA every 3 months. What stupid waste. But… blue shield hopes my doctor will tire of paperwork & find a cheaper, less effective med.
Also, insurance has gotten incredibly expensive. It’s my most expensive monthly cost.
I think that any policy improvement that is suggested/promised by MAGA politicians that sounds like it will be beneficial to healthcare consumers will actually be about saving money for the insurers.
For example, if they come up with some standardized approach to prior authorizations, 1) I bet it will include a provision that says something to the effect that x number of doctors/experts agree on this determination based on the consolidated rules; and 2) the “new and improved rules” will make it harder to appeal their decisions.
Making people do prior authorizations for people with permanent disabilities which are the focus of the treatment requested is ludicrous. They use these tactics to stall, and to bank on a percentage of people who will give up after the first “no.”